I have the same issue and it was completely resolved with Amytriptalene. Until I found the right doctor it felt like my life was over, and they kept giving me useless treatments. Contact Dr Hanno at Stanford; he’s the only competent one I have found.
Sorry, no scientific link that I know of. I just have similar symptoms and wanted to see if there was any historical similarities. It may just be anecdotal but it seems there are a few others here with similar symptoms and history, perhaps there is a link.
I had a undescended testical when I was younger, and had a surgery when I was 5 or so. Curious to know the link, as I share the same symptoms as OP now that I‘m 30+.
Thanks so much. I'm actually not in the Bay Area. But yesterday I met a second urologist. They diagnosed me as CPPS after a 1-2 years of misdiagnosis from sleep doctors, primary, and another urologist. So I'm happy to finally have this diagnosis.
My new urologist is having me try OTC drugs (Zyrtec, ibuprofen, benadryl) as he said that it can be linked to inflammation/allergies where NSAIDs and anti-histamines can help. I'm trying those out to see what happens. Did your doctor send you through that course of treatment to try out?