I genuinely appreciate these responses because you state them much calmer and clearer than I can. To me, and I’m not accusing anyone here of this, these discussions feel really dishonest or at the very least completely unempathetic. I see in another comment this user says they feel sympathy, but clearly not empathy. and that’s fine to me! very few people have experienced what I have and will experience, in the specific way that I have, and my heart personally reaches out to anyone else that deals with some health condition that limits their quality of life or worse. I have, however, spent a ridiculous amount of time in the healthcare system, for a variety of reasons other than this specific topic, and know that this kind of callousness is more of a feature than a bug. To my mind, it’s also extraordinarily inefficient.

I’ll pose an argument to the rationalist crowd that I feel likes to think and feed deeply off these types of discussions:

say I’m destined to create the cure for cancer or bring about the singularity or whatever. I’m not, but let’s say I was. And I fall and hit my head one day and die because some billionaire decided that my condition wasn’t worth investing a miniscule fractional percentage of his wealth.

would that be wasteful?