It is, which is why I'm not really going to engage with it directly. honestly, this attitude is so insanely common and I struggle to understand it personally so I dont really engage with it much. In real life people often struggle to understand, like, if you look at me I "look" fine, yet, I am mobility limited and have to use a cane a lot. They'll be casually dismissive about it like "oh, there's gene therapies now, someday they will cure you." Like, no, and I still have to live with it until and if that day comes (it probably will not). Saying things like that diminishes the very real struggles I deal with for pretty much no reason at all and is really callous, even though people are often unaware of how it sounds.
I'm also being purposely vague here to protect my privacy but I think most people if they had a condition that (and this is all true):
- causes severe pain and limits mobility to the use of a wheelchair over a period of time. No ability to exercise or have sex after it has progressed enough;
- Limits your ability to procreate because of the above bullet point but also because of the high risk of passing it off to offspring
- A cure exists but society hasn't deemed you special enough to put time into it
That.. wouldn't make you angry a little bit? I don't have to even blame anyone or anything to be allowed that. It's enormously frustrating. I'm not being entitled by being frustrated and angered by it, that idea is of course perfectly absurd. As is the idea that the anger needs to be "directed" anywhere. I guess I maybe drink a little too much and that's where it goes? honestly, who cares? And if I may borrow the parlance of the GP comment, their doesn't seem very "logical" from my POV. As is the downvoting swarms that usually accompany any kind of sentiment against the Almighty Altar of Capitalism. I'm not even making a critique of it, or offering an alternative, because I don't have one, but I don't need to provide one. It does suck, albeit for a small amount of people. But I guarantee you if you added up the sum of rare but probably treatable/curable diseases that we havent spent time on because of the rarity, the sum of those people is probably a significant chunk of the population.
For what it's worth, I actually sympathize a lot with your frustration and have felt the same, but was honestly questioning if you were arguing from some sort of real claim that it's unfair for you to not have a solution now, or just from general emotional frustration.
For the first one, my arguments above, for the second one, fair enough, it happens to anyone suffering enough from something, and though I've tried to calm and redirect it when I feel that way, it's hard to pull off.
You also didn't explain, and i'm honestly curious: is this something that has no remedy for someone who's an adult, or something that has a treatment, but it's too expensive for you?
>But I guarantee you if you added up the sum of rare but probably treatable/curable diseases that we havent spent time on because of the rarity, the sum of those people is probably a significant chunk of the population.
Well yes, but there are also many much more widely devastating problems that we can also treat, but which haven't been fixed yet, and the reasons for that are way too complex to blame any one thing, or capitalism. Governments and all their immense resources are around too, yet they also don't quite seem to get around to fixing so many things that have solutions. Again, comparing the real world with your desires is never going to work. The world needs to be compared with its previous states for a fair sense of perspective.
I'm also being purposely vague here to protect my privacy but I think most people if they had a condition that (and this is all true):
- causes severe pain and limits mobility to the use of a wheelchair over a period of time. No ability to exercise or have sex after it has progressed enough;
- Limits your ability to procreate because of the above bullet point but also because of the high risk of passing it off to offspring
- A cure exists but society hasn't deemed you special enough to put time into it
That.. wouldn't make you angry a little bit? I don't have to even blame anyone or anything to be allowed that. It's enormously frustrating. I'm not being entitled by being frustrated and angered by it, that idea is of course perfectly absurd. As is the idea that the anger needs to be "directed" anywhere. I guess I maybe drink a little too much and that's where it goes? honestly, who cares? And if I may borrow the parlance of the GP comment, their doesn't seem very "logical" from my POV. As is the downvoting swarms that usually accompany any kind of sentiment against the Almighty Altar of Capitalism. I'm not even making a critique of it, or offering an alternative, because I don't have one, but I don't need to provide one. It does suck, albeit for a small amount of people. But I guarantee you if you added up the sum of rare but probably treatable/curable diseases that we havent spent time on because of the rarity, the sum of those people is probably a significant chunk of the population.