> "It may be true that I will always be infected with something but this particular infection has to go as it's killing me."

> My doctor physically took a step back as if I had slapped him.

Not to be cold, and I'm sorry, but what did you expect. You are talking to a doctor not jesus. Everyone with an uncurable disease wants a treatment but just because you want something doesn't mean its possible. If it did, nobody would die.

And of course your doctor isn't trying to come up with novel treatments. Your doctor is not a medical researcher.