I have a medical condition that makes me sensitive to everyday noises. It started when a friend invited me to learn to shoot but was complacent about my hearing safety.
Lots of conditions have pain from sound but this is no ordinary condition. It is highly unstable and degenerative. Something is broken, the more broken it gets, the more easily it gets broken, and the longer it takes to heal, if at all.
Many of these patients are stuck indoors 24/7, with earmuffs and earplugs, afraid of even the slightest sounds. Even then, they still get a myriad of symptoms, different kinds of pain, autophany, visual snow, distortions. Most have tinnitus, myself included, and it can be very, very loud. One poor guy has 50 tones. Another woman hears it in her sleep.
All these people want to live but this condition is living torture and you end up living like a caged animal. We have no idea what causes it and there's little hope of improvement, given that it gets virtually no research money. No drugs exist which can mask the pain. Many of these patients end up going because they truly have no options, no hope, and living has become unendurable.
Thankfully my hole isn't so deep yet but I have decades of dental appointments and MRIs to endure. As long as I mostly stay home and avoid nearly all social interaction, I can probably hold out a long time before I get that bad. However, I also have mystery tendonitis and other pains that are getting worse so idk. My mast cell labs are all very abnormal so I'm thinking it's auto-inflammatory.
Mayo clinic is a waste of time I hear for stuff like this. I'm going to try the Metrodora institute, see if they can come up with something. Nervous that I may worsen from the flight and end up stuck there.
Lots of conditions have pain from sound but this is no ordinary condition. It is highly unstable and degenerative. Something is broken, the more broken it gets, the more easily it gets broken, and the longer it takes to heal, if at all. Many of these patients are stuck indoors 24/7, with earmuffs and earplugs, afraid of even the slightest sounds. Even then, they still get a myriad of symptoms, different kinds of pain, autophany, visual snow, distortions. Most have tinnitus, myself included, and it can be very, very loud. One poor guy has 50 tones. Another woman hears it in her sleep.
All these people want to live but this condition is living torture and you end up living like a caged animal. We have no idea what causes it and there's little hope of improvement, given that it gets virtually no research money. No drugs exist which can mask the pain. Many of these patients end up going because they truly have no options, no hope, and living has become unendurable.
Thankfully my hole isn't so deep yet but I have decades of dental appointments and MRIs to endure. As long as I mostly stay home and avoid nearly all social interaction, I can probably hold out a long time before I get that bad. However, I also have mystery tendonitis and other pains that are getting worse so idk. My mast cell labs are all very abnormal so I'm thinking it's auto-inflammatory.
Mayo clinic is a waste of time I hear for stuff like this. I'm going to try the Metrodora institute, see if they can come up with something. Nervous that I may worsen from the flight and end up stuck there.