At this point, forget about data privacy. If the data is out there, it's out there and you're never going to change that. The best you can hope for is for the actual practical consequences to be mitigated by effective legal constraints on what people can do to you based on your data.
In the US, there are a few examples of this kind of protection - the Genetic Information Non-discrimination Act prohibits genetic information being used to deny/price health insurance coverage, or to discriminate in employment. The Affordable Care Act (aka Obamacare) prohibits denial of health insurance coverage for (or due to) pre-existing conditions. (Note that life insurance in the US is not covered by these laws, so people who may ever need life insurance coverage would be ill-served by ANY kind of genetic testing for any reason - the information can only hurt you. And god help you if you have a bad credit rating; in most places you won't be able to get a decent job or housing.)
Many European countries have better protections against discrimination in housing, employment, and insurance coverage on the basis of personal data (in addition to granting individual rights over that data held by third parties.) As an American who suffered identity theft in the US and suffered all kinds of hassles for years as a result, the single thing that ameliorated them best was leaving the USA and moving to an EU member state.
At this point, forget about data privacy. If the data is out there, it's out there and you're never going to change that. The best you can hope for is for the actual practical consequences to be mitigated by effective legal constraints on what people can do to you based on your data.
In the US, there are a few examples of this kind of protection - the Genetic Information Non-discrimination Act prohibits genetic information being used to deny/price health insurance coverage, or to discriminate in employment. The Affordable Care Act (aka Obamacare) prohibits denial of health insurance coverage for (or due to) pre-existing conditions. (Note that life insurance in the US is not covered by these laws, so people who may ever need life insurance coverage would be ill-served by ANY kind of genetic testing for any reason - the information can only hurt you. And god help you if you have a bad credit rating; in most places you won't be able to get a decent job or housing.)
Many European countries have better protections against discrimination in housing, employment, and insurance coverage on the basis of personal data (in addition to granting individual rights over that data held by third parties.) As an American who suffered identity theft in the US and suffered all kinds of hassles for years as a result, the single thing that ameliorated them best was leaving the USA and moving to an EU member state.